Finding out that your much longed for child has a life changing medical condition or disability is not easy. Sometimes you may have had an vague feeling that something isn’t quite right but getting other people to recognise it can be a battle. “Children all develop at different rates” or “You’re a new mum, you’re bound to be anxious” are common responses when you voice your concerns. For others the differences are more obvious from the start. Either way it can be a very worrying time for parents.
Life goes on and raising a child with a disability can be rewarding in many ways
Once your child is diagnosed with FOXG1 Syndrome you can join our friendly UK Facebook group.