FOXG1 UK

Join Hands
& Be A Hero

Participate in our mission to support families affected by this rare genetic disorder. Help us to find better treatments and potentially a cure for FOXG1 Syndrome

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Our Mission

FOXG1 operates across the UK, working to bring hope to individuals and families affected by FOXG1 syndrome. We raise vital funds to drive research into treatments that can improve quality of life, as well as to deepen scientific understanding of this rare and complex disorder. By sharing research findings openly, we aim to benefit the wider public, raise awareness of FOXG1, and build greater understanding and compassion for the syndrome among communities, healthcare professionals, and social care services.

They Need
Your Help!

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Help fund the research

that could change lives

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We know the researchers

We know the projects

We know what they cost

We know what the next step is

As a dedicated charity focused solely on FOXG1 syndrome, we work closely with leading researchers to fund projects with the greatest potential to improve lives. Every donation brings us one step closer to better treatments for people living with FOXG1 syndrome.

Every pound makes a real difference.

Your support helps us fund pioneering research, connect world-leading scientists, and accelerate the development of therapies that could improve the lives of children and adults affected by this rare neurological condition.

Whether you give £5 or £500, your generosity helps turn promising ideas into real research.

By donating through our JustGiving page, you’ll be joining a community of supporters who believe that families affected by FOXG1 syndrome deserve hope, answers, and better treatment options.

 
FOXG1 Syndrome Child in therapy

My world can be a little harder to navigate. I need extra care, therapies, and support every day. Give me the best chance to thrive in my own way.

 

Thank you for helping us make progress possible.

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Did you know that whenever you buy anything online – from your weekly shop to your annual holiday – you could be raising free donations for FOXG1 UK with easyfundraising?   

There are over 8,000 retailers on board ready to make a donation – including eBay, Argos, John Lewis & Partners, ASOS, Booking.com and M&S – and it won’t cost you a penny extra to help us raise funds.  

All you need to do is:   
1. Use the button below and join for free. 
2. Every time you shop online, go to easyfundraising first to find the site you want and start shopping.  
3. After you’ve checked out, the retailer will make a donation to FOXG1 UK at no extra cost to you whatsoever!   

There are no catches or hidden charges and FOXG1 UK will be really grateful for your donations.   Thank you for your support.

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FOXG1 Hero

This year Paul took on a personal challenge: walking between 125 and 130 miles to raise funds for FOXG1 UK.
This was more than a walk. It was a way to support children and families living with a rare neurological condition that deserves far more awareness, research and support.
Every donation, no matter how small, will help move things forward – from funding research to improving daily life for families affected by FOXG1.

Paul raised £300 to help fund vital research.

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Can you take on a challenge for FOXG1 UK and help raise funds?

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