Disability Rights UK is the UK’s leading Disabled People’s Organisation (DPO), led by, run by, and working for disabled people. The organisation campaigns to improve rights, inclusion, accessibility, independent living, education, employment, and equality for disabled people across the UK. Their work is guided by the social model of disability, recognising that it is often barriers within society—not a person’s condition—that create disability. Through policy work, advice, training, campaigning, and partnerships, Disability Rights UK works to ensure disabled people have equal rights, opportunities, and a strong voice in decisions that affect their lives. For families living with FOXG1 syndrome, Disability Rights UK offers valuable information on benefits, education, independent living, accessibility, and legal rights, making it an excellent source of support and guidance when navigating services and advocating for your child.