Please complete our FOXG1 UK family registration form below. The information you provide will help us understand and support FOXG1 families, plan future events and activities, and ensure our services meet the needs of our community.

Your information will be kept confidential and will not be shared with other families or organisations without your consent, unless we are legally required to do so. All information will be stored and handled securely in accordance with our GDPR and Privacy Policy.

At FOXG1 UK, we sometimes take photographs and videos at events, activities and other FOXG1 UK activities. We may use these images to help raise awareness of FOXG1 syndrome, share information about our work and promote our organisation. We will only use photographs or videos in accordance with the choices you make below. You can choose not to give consent. This will not affect your registration with FOXG1 UK, your access to our services, or your ability to attend our events.

You can withdraw your photo and video consent at any time by contacting FOXG1 UK. If you withdraw your consent, we will stop using your images for future uses covered by that consent where reasonably possible. We may not be able to remove photographs or videos that have already been printed, published or shared before we received your withdrawal request. Withdrawal of consent will not affect your registration with FOXG1 UK or your ability to use our services or attend our events.

Thank you for helping us build a stronger FOXG1 UK community.