Register with FOXG1 UK

Register Your Family with FOXG1 UK

Please complete our FOXG1 UK family registration form. The information you provide will help us understand and support FOXG1 families, plan future events and activities, and ensure our services meet the needs of our community.

Your information will be kept confidential and will not be shared with other families or organisations without your consent, unless we are legally required to do so. All information will be stored and handled securely in accordance with our GDPR and privacy policies.

Thank you for helping us build a stronger FOXG1 UK community.

First First your

Parent or Carer's First Name

Parent Carer's Last Name

Relationship to child

Child's First Name

If you have more than one child with FOXG1 syndrome please complete a separate form for each child.

Child's Last Name

Town

First Part of Post Code

Genetic Mutation

Please enter your child or young person's genetic mutation. For example deletion, duplication, missense, nonsense, frameshift, mosaic, other or unknown.

Are you interest in attending future FOXG1 family days?

Photography or Video Consent Statement

I am the parent/carer of the child named above and give permission for photographs and/or videos of my child to be taken and used for the purposes described above.

I understand that:

Consent is voluntary.
I can withdraw my consent by contacting FOXG1 UK.
Withdrawal of consent will not affect activities or services provided to my child.
Once an image has been published or shared online, it may not be possible to completely remove copies that have already been downloaded or shared by others.
FOXG1 UK will take reasonable steps to protect children's privacy and safety when using images.

Do you consent to photographs of your family being used for FOXG1 UK social media, printed publications and our website?

Signature

Clear Signature