FOXG1 syndrome is a rare and devastating genetic disorder that profoundly affects children and their families. Children with FOXG1 can experience severe developmental delay, seizures, movement difficulties, feeding problems and significant neurological challenges. There is currently no cure and no treatment that addresses the underlying genetic cause.

We are raising funds to support pioneering research that could change this. Through our work with King’s College London and the new MRC Centre of Research Excellence (CoRE) in Therapeutic Genomics, we have an opportunity to help advance the development of genetic therapies for FOXG1 syndrome.

With your support, we can help turn groundbreaking research into hope for children and families affected by FOXG1 Syndrome.