FOXG1 UK Research

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Cutting-edge Genetic Therapies

FOXG1 syndrome is a rare and devastating genetic disorder that profoundly affects children and their families. Children with FOXG1 can experience severe developmental delay, seizures, movement difficulties, feeding problems and significant neurological challenges. There is currently no cure and no treatment that addresses the underlying genetic cause.

We are raising funds to support pioneering research that could change this. Through our work with King’s College London and the new MRC Centre of Research Excellence (CoRE) in Therapeutic Genomics, we have an opportunity to help advance the development of genetic therapies for FOXG1 syndrome.

With your support, we can help turn groundbreaking research into hope for children and families affected by FOXG1.

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  • ABOUT FOXG1 UK

    FOXG1 UK is dedicated to changing the future for people living with FOXG1 syndrome.

    We support families affected by FOXG1 while working to increase awareness, improve understanding of the condition and accelerate research into effective treatments.

    Because FOXG1 syndrome is so rare, research can struggle to attract the resources it needs. That is why fundraising is so important. Every donation helps us support research and create opportunities to develop treatments that could address the underlying genetic cause of FOXG1 syndrome.

    For families living with FOXG1 today, research represents more than scientific progress — it represents hope for a better future.

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    ABOUT THE MRC CoRE

    The new MRC Centre of Research Excellence (CoRE) in Therapeutic Genomics at King’s College London is working to transform the development of genetic therapies for devastating genetic disorders.

    The Centre brings together leading researchers and clinicians to develop cutting-edge approaches that could enable genetic therapies to be developed at scale for conditions that currently have few or no treatment options.

    This work could be particularly significant for rare genetic disorders such as FOXG1 syndrome, where the underlying genetic cause is known but effective treatments remain out of reach.

    By supporting this campaign, you can help us contribute to this exciting area of research and accelerate the search for therapies that could one day change the lives of children with FOXG1 syndrome.

    Together, we can help make a future where FOXG1 syndrome is treatable a reality.

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